I have to disagree! I freely mod a conservative sub in my spare time.

It has definitely not been taken over by fascist snowflakes.

As proof, you are welcome to come and see for yourself: ☆ kbin conservative community ☆

This literally happened to me, only I lost way more than half my income.

It's horrible, and frequently remembering the life I had is very painful.

I can't work out what possible upside you think there is to this situation.

You may have something different but if you have me/cfs you need to hit up the support groups, you can prove disability with a 2-Day CPET test.

I'm not in the US but many of the Americans in my support group were denied the first time they applied and got it on the second.

Midlife crisis?

On the surface it is an order. He's using imperative sentence construction with no "please can you" and no question mark.

This is exactly how commands/orders are expressed in English.

"Do this" "Come here" " Go there" "Sit Down" "Give me 20 press ups".

For example, myalgic encephalomyelitis (sometimes referred to as chronic fatigue syndrome) has been dismissed and under-researched for decades. The lack of research has perpetuated a limited understanding of the underlying biology, a lack of diagnostic testing, a lack of respect for patient experiences and an embarrassing lack of action. Research funding is extremely low relative to the burden of the disease and its prevalence.

About half of long COVID patients also meet the diagnostic criteria for myalgic encephalomyelitis. By our sheer number, our advocacy for more research and clinical trials should be harder to dismiss.

This is dismissed and underfunded world-wide.

The status quo - pretending it's all in your head - is in the interests of insurance companies (and governments with disability welfare systems).

You can also do temp work, English language teaching, proofreading, data entry.

Ahhh, I'm so disappointed, I've been working on @conservative for months, and really hoping to take it on,
and it looks like I missed out.

Back when I started they actually held a poll about whether my kind of nature content would be OK and it was voted yes, so I hope the new owner is pro-conserving things and doesn't purge it and turn it into just another US politics sub!

Not that I can find so far.

Despite the boost in numbers, I think making the jump from reddit has been too labour intensive for LC/PASC and ME/CFS communities. It's the one thing I still visit on reddit.

It's not much, but I am beginning to put a bit of data on [email protected], and longhaulers are welcome there. It also collects mastodon toots on related hashtags.

If you have been diagnosed with this I suggest you seek a second opinion.

Unfortunately there is a long and shameful history of certain doctors ignoring the physical aspects of me/cfs and trying to class it as psychosomatic or a conversion disorder.

Multiple sclerosis used to have the same problem and was seen as "hysterical paralysis".

Great news, he has sorted it out for me! Thank you for suggesting it!

@conservative is saved!

there are a lot of unintuitive things going on with the science of climate change

But science isn't intuition-based. It often comes to conclusions that are far from intuitive.

Very! I love it that George Monbiot of all people writes about it though. I've been a fan of his journalism for years.

Thank you for the idea. I'm not sure how to contact Ernest?

Ugh, sorry that happened to you!

That sucks in terms of proving disability in your country (you would be eligible already in mine but since disability here is only half of minimum wage it's not really the solution like it is where you are).

But it's really fantastic that you are able to do so much!! That's way better. You're going to be able to work from home lying down. Lots of cool ideas in here.

I think you should still apply for disability every year. Maybe find a support group or organisation for people with broken necks/spinal injuries, they might know some aspects of the process.

Good luck to you. I know what it's like to lose everything, and I really hope you are able to rebuild some kind of life for yourself.

A CPET is a cardiopulmonary exercise test. The 2 day CPET is when you get the test and then get it again 24 hours later.

People with me/cfs have different results than sedentary controls, so it's a good way of helping prove disability.

If you didn't know what ME/CFS is (myalgic encephalomyelitis) then you haven't been diagnosed with it and none of this applies to you, but I thought it was worth mentioning in case you had.

Thanks! It's so nice knowing it won't all be deleted!

@robotistry

Thanks, that makes sense in the context of what you experience (for me I can want to be clean all I like, but if I push it too far I literally can't walk or move my arms, so would paradoxically end up dirtier).

If I'm understanding you correctly, improving baselines and tolerance is more important than specific symptoms?