I wish there there were more parenting comms. You have a few low activity general parenting comms and a surprising amount of healthy dad comms (go dads!), but you don't have the break outs. I guess I'll shill my instance where I'm hoping more parents will pop up to

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There are some more, but those are the ages I have kids in lol.

I thought you guys would find this article interesting. I think the answers are thought provoking for anyone who has any kind of invisible struggle.

I'm not ND, but I have a child who is ND and I hang out in the spaces. I don't think even between autistic people there is a consensus. I say "autistic person" because I consider autism to be a fundamental trait like blindness or height. We don't say "person with blindness" or "person with height" we say "blind person" and "tall person". Autism is something you are born with and something that cannot be changed about you, so thus it's "autistic people" for me, but I've seen autistic people who've been offended by "autistic people" and wanted people to say "people with autism". I'm not sure it's battle that can be won if there's not consensus within the group about it.

I thought you guys would enjoy this story about me and my daughter.

I recommend the book Precious Little Sleep. You will think about how to get your baby to sleep a lot during the first year and especially during those first 3 months. People often recommend The Happy Sleeper, but personally I think that book is for when things have already gotten out of control, not when you're just trying to formulate a plan.

I would recommend having a peek at the CDC's milestones app and also the ASQ-3 which is a checklist for milestones going up to 5 years old.

Yale has a fantastic online parenting course that's based by science. It's really an in depth explanation of the ABC Model of parenting, which has been shown to have the best outcomes and is really the authoritative style of parenting, which should not be confused with the authoritarian style of parenting which does not have great outcomes. Neither does the permissive style of parenting.

The "Your ___-Year Old" Books (here is Your One-Year Old) are fantastic for learning what children at like at various ages as far as temperament and general interests. I would disregard a lot of the parenting advice in this book because it's very much of that "Girls like dolls. Boys like trucks. Neither should speak unless you give permission" variety.

My 4 year old apologized to me without prompting and it was a proper apology not just sorry. She got my attention and said "Sorry, I kicked you." It's the first time I've ever gotten a proper apology from her.

I started my kid on a full sized bed and called it a day. That will be big enough for her to share with a friend and/or cousin until she's an adult and out of my house. She slept wild in it at that age, but she sleeps mostly correctly in it now at 4. although dead in the center. Perhaps by 8 she'll have a favorite side and the answer won't be "why not both" lol

It's unfortunately, but you have to be your own advocate. I do a lot of internet research for both me and my child. I spent 2 years listening to doctors tell me nothing was wrong with my child despite all the evidence I presented. It's only by luck I got her into a trial where they had to test her and wouldn't you know, she's got ASD. For my MS I was very lucky. I was referred out to a neurologist who thought an MS specialist would find me fascinating. And he did. I have a very odd presentation of MS. Also for my demographic I'm a unicorn. I'm 100% healthy aside from the MS. Apparently, so many people in my demographic suffer from diabetes, etc that they basically can't get trials going. I just know my doctor is waiting to ask me to join a trial lol. I wouldn't say he's hoping I fail my current meds so he can put me on something experimental, but he wouldn't be sad.

That all really sucks. I'm sorry.

For an unasked for suggestion, have you been tracking symptoms? I've found that doctors have a higher chance of believing you when you have logs. Probably wouldn't have done shit with that scumbag doctor, but sometimes what can sound minor is alarming when you can prove how long it's been happening.

I think you need yo file a complaint against scumbag doctor. The more you write, the more I think he needs some evidence stacked against him for the day that someone can bring a malpractice suit against him. Filing a complaint against him doesn't do anything for you, but it could help someone in the future.

I'm sorry you ran across the most douche-y of doctors

Report him please. He's gonna cripple or kill someone.

Also what I use for fatigue is a supplement called coq10. It's not magic, but it does give me a few more hours of energy before I can't move and makes me feel almost normal waking up. I don't know if it will work with your condition, since it mostly helps where your fatigue is caused by your body spending a lot of time healing itself, but maybe worth a shot?

Hello all! I'm Saplith and I've been diagnosed with MS for about a year. I've had it for about 1.5 years I think. My condition is stable after I got on medication and knock on wood it stays that way.

I think that communities like this are just slow. On reddit, I saw the most activity around articles surrounding the condition. You have to remember that Lemmy itself is just getting going. You just need to keep some activity here until you get enough people to make the community flourish. If when people find this place, they don't even see posts, they'll think the place is dead. It's why I'm trying to find as many parenting articles as I can and post them on my instance so when the parenting stuff spins up, people will know I want to welcome them and I'm still here

That sucks. Why does the rheumatologist get to overrule the neurologist? Isn't Lupus in the neurologist's domain?

Yes I'm hoping that everything stays stable. I have some aphasia, but no other symptoms. Hopefully a few word mix ups is all I ever have to deal with.

I'll throw a link into the MS discord server I'm in. Couldn't hurt

I would love it if this were something on the market. I worry a lot about my daughter's mental health. She gets anxious easily and at the end of every school term, she seems burnt out. It would be good if I had something that could show me the build up, so I could alert her teachers or change what's happening at home

That really sucks. Hopefully there will eventually be something to help in a useful time frame.

I think there there is an inherit disadvantage in not being typical

That is what I said. I ascribed no value to being atypical. That's you and it might reveal what you think.

I read your link and it's basically like "I mean that was bad then, this is now. I don't have any data to prove it, but left handed people totes don't die younger" C'mon, that's a ridiculous article that's all conjecture about how it used to true before that left handed people died young, but now it's totally different. They don't provide any hard evidence that it's different, but it totally is!

Let's say you're right because honestly I don't feel like arguing this point, but it's not my greater point at all. Let's say that left-handed people suffer no physical afflictions from being left-handed. Very cool, except every left handed person I know has suffered from being left handed and had to "mask" and accommodate the world being right handed. My point is that realistically, you cannot be accommodated all the time 24/7. It's all great and shit to say that you should be accommodated, but in reality that doesn't happen. Sometimes it doesn't happen because people are callus but sometimes it doesn't happen because it's not actually a thing that is possible.

For example, realistically when I was in grade school and the internet didn't exist how was someone going to accommodate my visual and auditory processing issues? When I was in college, most of the US had dial up and smartphones weren't ubiquitous. How was I supposed to be accommodated and also lead an independent life because those were my choices. Being shadowed by an able bodied person or sucking it up. There was no actual way for me to be accommodated beyond the experimental therapies that I have no fucking idea how my mom found before the age of the internet.

Being typical is easier. If you are 7ft it sucks. if you are 3ft and an adult it sucks. The world is not made for you. And you have to pay in ever time or money to get a great many things that other people effortlessly get. I would wish that on my kid. I don't care whatever fucking super power you think she'll get. I want her to spent her time at the park with her friends instead of at doctor's offices. I want her to hang to go to summer camp without me worrying if whatever aid will quit and then she'll have to come home. I want to spend my money to sent her to her fancy ass school and not worry that they'll tell me that she can't have the best education because she's too much trouble and she can go to the public school where she'll be accommodated all day long and isolated and miss out on so much.

Fuck that. I want my kid to be typical. I don't want her to need any kind of accommodation. I don't even want her to need glasses or braces or any other acceptable kind of accommodation because that's living life a little harder and what parent wants that for their kid? That's my point. I don't want it to be harder. And when you need accommodation, it's harder. Even something as minor as needing glasses for the rest of your life is harder than never needing them at all. If you can't understand that point, then you're just delusional.

This is interesting to me, because before this I wouldn't have said that muderbot/secunit was autistic. I would have said that it was extremely socially anxious. But when I think about how it doesn't like to directly look at people and of course its obsessive watching of soap operas, I think I should reevaluate that assessment.

I continue to be team file a police report. Try with the school, then if that fails file a report with the school against the child. The age is suprisely low in many states. I've seen it as low as 7 years old. You file enough police reports against a child in a school, and suddenly you've got a very good case to bring to the feds about the school and their negligence. For older children, like preteens, they can even be forcibly removed from the school because the laws they're breaking. People can say you're ruining that other kid's life, but what about your kid. No one was worried about their life being ruined.