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Reply to @khontis
I... can't tell how I feel. On one hand: YAY, people with SCA can get help and therapy and have better lives. This is a…
Absolutely, this is a delicate issue with good and bad possibilities. On one hand, who are we to say what conditions should or shouldn't be treated? But on the other, gene editing could further marginalize those with disabilities if not approached sensitively.
I have mixed feelings too. Ultimately I think open and ongoing discussion is key, with input from medical experts and also those living with conditions in question. Regulation is needed but must balance ethics, autonomy and progress. Maybe public debates as technology advances could help shape policy. There are no easy answers but care, compassion and prudence on all sides seem most wise for now.
All in all, gene editing NEEDS to go mainstream. And once it's truly affordable, it really will.
