Spyke
sh.itjust.works

This genuinely felt like a weird scam to me. I had no idea it existed, but apparently there's a whole host of childhood conditions that can cause childhood dementia.

That's very upsetting.

16

The donation link is above all of the social media (Facebook, Twitter/X, etc.) ones so the focus seems on bringing in money rather than raising awareness.

Nations used to have functioning government systems that would fund this stuff - not just in children but in adults too. But right-wing parties seem in control of everything lately, thus such children that provide less tangible benefits to society will get triaged in terms of available funding.

3
555reply
lemmy.world

Still kinda sounds like a scam. This particular video I mean. Because I act the same way when I’m high af. Having known people who actually have dementia, this is not how they act.

-9
Ashyrreply
sh.itjust.works

No idea about this particular girl, but there's plenty of authentic disorders that can cause childhood dementia:

  • Batten Disease (Neuronal Ceroid Lipofuscinoses, NCL)
  • Sanfilippo Syndrome (Mucopolysaccharidosis Type III, MPS III)
  • Niemann-Pick Disease Type C, GM1 and GM2 Gangliosidosis (Tay-Sachs and Sandhoff Disease)
  • Leukodystrophies (such as Metachromatic Leukodystrophy and Krabbe Disease)
  • Mitochondrial Disorders (such as Leigh syndrome)
  • Rett Syndrome
13

Watch video and watch follow up video and damn that is fucked. In the second video a child young as 2 got that shit. We need a cure yesterday

4
jlai.lu

I have never heard of childhood dementia and a quick Google search seems to point only on this website and other sites with exact same wording.

The numbers they give seem impressively high for a disorder that is barely documented on the internet.

The symptoms are basically normal children behavior.

This looks like a scam design to scare parents into buying something.

It might look like this by accident but I would do a lot more research if I were to donate or take their advice.

13

Yeah, I did some research and it's really weird. The majority of sites that talk about it are Australian and it's barely, if at all acknowledged anywhere else in the world. I found some sites that seems legit:

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3943077/

https://www.adelaide.edu.au/newsroom/news/list/2023/09/18/devastating-causes-of-childhood-dementia-revealed

https://www.alzint.org/news-events/news/shining-a-light-on-childhood-dementia/

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10486052/

https://www.dzne.de/en/news/background/childhood-dementia/

https://rareportal.org.au/rare-disease/childhood-dementia-disorders/

https://rarediseases.org/organizations/childhood-dementia-initiative/

I think that maybe it wasn't recognized before due to how rare and weird it is, like ptsd was, but I can't say for sure if it's not a scam.

3

You reached the end

This is what childhood dementia does | Spyke